Worth a Million Words!

If a picture is worth a thousand words, a video must surely be worth a million!  Last week Skyler performed in a Grandparent’s Day program with his daycare.  This was the first program where he did not have an adult sitting or standing right with him to prevent him from wandering off the stage.  After watching the video, I went back and viewed last year’s video from Grandparent’s Day.  The change in Skyler over the last year is DRAMATIC!  He still has a ways to go to recover from autism, but he is well on his way.  I am posting a clip of both videos below to show his amazing progress.  Notice how he tries to participate in the latest program.  I am so proud of him!

* Please note that I did not intentionally dress him in a Duke shirt for both programs.  That was just a weird coincidence, but it will help you to pick him out in the video.

About Lori R. Edwards

I am the proud mommy of a wonderful little boy who has been diagnosed with Autism. We are currently working on his recovery.
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12 Responses to Worth a Million Words!

  1. dmiffleton says:

    Saw the video of your at Grandpa’s day 2011 and 2012. Amazing!!! I would never know the 2012 Skyler was autistic.

    • Lori R. Edwards says:

      Awww, thank you! That’s about the best compliment someone can give Skyler at this point! If you’ll notice about halfway through the 2012 clip though, he gets a little flappy from overstimulation. But, overall, I couldn’t have been more pleased!

  2. dmiffleton says:

    Lori,

    Did you Skyler ever go through a phase where he refused to go to sleep. Parker will fall asleep with my husband or I beside him, but the minute we get up he wakes up. I wasn’t sure if you experienced this and had any suggestions.

    • Lori R. Edwards says:

      No, we’ve never experienced that problem – at least not since Skyler was a baby. We did go through a phase of night terrors though, and that was awful. There are studies that show that autistic children don’t make as much melatonin, and I know several people that supplement with it. They make a liquid melatonin, and we’ve used it before. It seems to work well, so you may want to give it a try.

  3. draleausir says:

    Hi, I’ve been reading some of your reviews on IMD. Just wondering if you could give an update on your son! Did you feel like his gains returned after that bought of disease? What is your current supplementation/dosage for Skyler? Have you increased your dosage? I’m investigating these things for my own daughter. We have started chelating my wife with AC protocol and are just very reluctant to start our daughter because its so demanding and potentially hazardous if you don’t get it right.

    Sincere thanks,

    Dennis

  4. cdolling86 says:

    I can’t remember which link from a long nights worth of searching for autism treatments that led me to your page, but I have to say I love your blog. I have read and reread so many of your posts. The improvement with your son is so amazing! I watched the video of your son for Grandparents day with my 2 year old, looked at him and said “This will be you! I know it!”. Thank you for sharing your knowledge and experience… and most all of for giving so much hope to other parents. What a wonderful boy you have!

    • Lori R. Edwards says:

      This seriously brought tears to my eyes! Thank you so much for your kind words!!! If I helped even one person to have hope, then it was 100% worth it! Your kind note just made my year!

      • cdolling86 says:

        You’re so welcome! 🙂

        My son is 2 years old (27 months) and hasn’t been diagnosed (YET). He was evaluated by Early Intervention and has qualified for therapies for his delays in speech/communication , cognitive, social and self adaptive. He also has some mannerism of hand/arm flapping, inconsistent eye contact, unresponsive to his name and an oral fixation… constantly putting things in his mouth but at the same time is an extremely picky eater – all of which is leading me to believe that he will probably be diagnosed. He will be seeing a Developmental Pediatrician in about an week and a half. I’ve implemented a GFCF diet at a slow pace since he’s such a picky eater… but for the most part he’s been doing pretty well. His EI therapy is schedule to begin this week. I’m also eager to start treatment with a DAN doctor (Dr Neubrander’s office is located about 40 minutes from me). They normally schedule 3 weeks out. Do you think I should go ahead and make the appointment or wait to receive a diagnosis first? I’m pretty sure there will be one… but I’m not sure if they diagnose the same day or if it will take months of seeing any possible progress with Early Intervention to establish one. I’ve heard to start slow… as hard as it may be, just so its easier to track what is working for him and what isn’t, but there is a big part of me that really wants to start biomedical treatment as soon as possible considering how significant improvement can me. Do you think I should wait? Or go ahead and make the appt with the DAN Doctor… considering it’ll still be about 3 weeks until the 1st appointment anyway.

        (Also, this DAN Doctor will cost about $2500 for the 1st visit – includes extensive paperwork to be filled on my part for Dr. Neubrander’s review, physical, blood work , lab tests – all before any insurance reimbursement, 2nd visit $500-600 due to the blood work results and custom supplementation, and following visits range to about $300 a piece. Does this sound standard?)

        I appreciate your input! Thanks so much for doing what you do.

        – Claire

        • Lori R. Edwards says:

          That sounds almost verbatim what Skyler was like at that age. If it were me, I would go ahead and schedule with Dr. Neubrander. You’re lucky to have such a well known DA doctor that close! Even if he doesn’t get the “official diagnosis,” it sounds like there are qualities that could definitely be improved through biomedical interventions! Our initial appointment wasn’t quite that expensive, but we’re also in a smaller town, and our DAN dr isn’t nearly as well known. For everything you’re getting in return, I think it would be well worth it. It’s quite expensive upfront, but it will be easier and less expensive after you get the initial testing out of the way. Just follow your heart. I can speak from experience that it is worth it though! I would’ve spent two or three times the money for the results we’ve gotten! Best of luck with whatever you decide. Keep us posted! I would love to hear more!

  5. sfree says:

    Thank you so much for your blog !!! You gave me the courage & knowledge that I needed to make an appointment for my 4 year old son. Regular pediatricians can be so discouraging, but after reading your blog I know it’s time for me to take control & try what I feel is right for him. He’s in speech, occupational therapy & an ABA program in the public school system. He’s made some progress, but now its like he’s going backwards & has not been improving over the last couple of months. I’ve got him in all the programs that they suggested, but now I just feel like its time for me to do what i feel is best for him, and I will not let anybody discourage me. Thanks to you & Skyler. Just like you & every mother out there fighting Autism, I just want my son back. Skyler is amazing & I know my son is too. So again thanks to you & your family for being so brave & doing what you believe in.

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