We received our methyl-B12 shots in the mail on Tuesday. I fretted and worried about them so much that we decided to go ahead and get the first one out of the way Tuesday night. Everything went fairly smoothly. A lot of parents just sneak in while their child is sleeping to administer these shots, but I just wasn’t comfortable with that and decided it was best to be upfront. So, we explained to Skyler that it was time for his shot and had him lay face down on the floor. He wiggled just a tiny bit while I pressed the plunger, but he didn’t whine or complain. Then when he stood up afterwards, he must have felt a bit of sting from the medication because he started saying, “Ow Ow Ow,” and grabbing his hiney. Of course, I freaked out! I was running for Tylenol and cold compresses when my husband stopped me long enough to see that Skyler was fine and had already moved on to playing a game on his iPod. I guess the sting just lasted about 30 seconds… so not too bad. I am hoping that the sting was because I forgot to take the medicine out of the fridge 30 minutes in advance to let it settle to room temperature. Our next shot will be Saturday, so I hope it goes even better and is ouch-less.
It’s Thursday now, and I am sure you are wondering if we’ve seen any results from that first shot. The answer is that I’m not sure. I’ve heard Skyler say some pretty advanced sentences that amazed me (“If I go potty, then I get candy!”), but I may be just looking too hard for something. My husband claims that he can’t tell any difference, but of course I push that aside, saying, “Well, you’re not his mother. A mother can tell when her child is different!” But, deep down, I really can’t say for sure right now if there is any progress. I know it’s asking a lot to see miracles after the first injection, but some do. Of course some see it after the second, so maybe Saturday night will be magical! I just know that when I picked Skyler up for school today, he ran up and hugged me. Most parents wouldn’t “get” the significance of that, but for me, it’s huge. You see, we have to tell Skyler, “Come here and give me a hug. Now wrap your arms around me. Squeeze.” He rarely initiates without these step-by-step instructions. But, today he did, so in my mind that is progress!
Now, not to end on a bad note, but Skyler also completely melted down at dinner tonight, and he NEVER does that. Granted, we were having dinner with my sister-in-law and nephew, and Skyler is not used to sharing our attention with other children, but still! He was screaming and crying and unconsolable for about 15 minutes. His father had to take him out to the car and sit with him until he calmed down. Those that know Skyler can attest to the fact that he’s always happy. This was so out of character! Maybe it’s a side effect of the shot. Maybe it’s a result of the shot working and is a side effect of the toxins coming out. I don’t know what it is, but I really didn’t like it! But, we’re going to hang in there and pray that was a one-time only episode! I’ll keep you all posted….
One more thing:
I was about to sign off of this post, but I did a little research first. Apparently, it is normal for children to become a little moody and emotional with this therapy. At Dr. James Neubrander’s Autism One presentation in 2005, he explained this reaction in this way:
Soon after initiating Methyl-B12 therapy, most children are suddenly more aware of their wants and needs. They are more aware of what they can and cannot do. They have lived in a state of social void for several years not being able to get what they needed, nor possibly even knowing what they needed. Now the world and all it has to offer is suddenly presented to them and they are overwhelmed, they cannot speak or make their wants and needs known so therefore they act out inappropriately. The same line of reasoning applies when children may be found crying, moody, or sullen. Suddenly they are more aware of their social needs as well as their social inadequacies. Because methylation affects all parts of the brain including the hippocampus and limbic system, for the first time in their lives, or at least to a stronger degree than ever before, they not only feel their emotions but act appropriately upon them and cry.
That’s truly sad, but hopefully Dr. Neubrander is correct, and Skyler is just learning to deal with strong emotions for the first time. Anyway, just wanted to share that with everyone. It makes me feel a little better, but I still don’t think we’d be able to stand it if these tantrums became a regular occurrence!